Epilepsy Awareness Month is a national campaign to get more people talking about epilepsy: a neurological disorder of the brain that involves recurring seizures and can affect a person’s ability to study, work, drive a vehicle and enjoy an active social life.
For the first time, 12 Tasmanians explain in a new podcast series, what it’s really like to live with epilepsy.
“Two years ago, Epilepsy Tasmania created a photo-story exhibition to show people what living with epilepsy is like, but this year we decided to go a step further and let people listen for themselves,” Epilepsy Tasmania CEO Wendy Groot said.
Creator of Epilepsy Tasmania’s new podcast series called My Journey
, Ikin Media director Sam Ikin said “epilepsy is something most people don’t talk about much”.
“Epilepsy is something many of us don’t understand and to be honest the thought of someone having a seizure freaks us out a little bit,” Mr Ikin said.
“My Journey is a series of podcasts that hopes to change this by helping us understand what epilepsy is really like, to demystify it and in turn make life better for people who are living with it.”
The My Journey podcast series was released at the start of Epilepsy Awareness Month along with a range of other events and activities people can take part in.
“Purple is the colour for epilepsy, so going purple is a way people can create their own opportunities to have conversations about epilepsy, learn about it, know what to do if we witness a seizure and let those with epilepsy know they have the support of everyday Tasmanians,” said Ms Groot.
“Some extra special activities we have created this month include a new photo-story exhibition in Launceston, an open garden event at Government House in Hobart, a finger-knitting challenge for all Tasmanian schools, and a purple bus called Miss Lila that is raising awareness of epilepsy and the 7-year-old girl with a severe form of the condition it was named after.”
Throughout March, many buildings and landmarks will light up purple to remind us that one in 10 Australians experience a seizure during their life, and one in 26 of these go on to develop epilepsy, which is two or more unprovoked seizures.
“With most schools having at least one student with epilepsy, we are encouraging Tasmanian schools to join our Finger Knitting Challenge and win some great prizes,” Ms Groot said.
“Schools just need to drape a school building or school item in purple finger knitting and share their results on social media using the hashtag #FingerKnittingChallenge. On our YouTube channel we have a video that shows how quick and easy it is to finger knit.”
To register for the finger knitting challenge, visit https://epilepsytasmania.org.au/finger-knitting-challenge/
and to watch how easy finger knitting is, visit https://youtu.be/GNomm6Brwjc
- Contributed by Epilepsy Tasmania
A new series of podcasts shed light on a condition that affects over 20,000 Tasmanians.